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PROPOSED MEDICAID CUTS: Some struggle to find care

Family's plight puts human face on medical costs for needy







CARSON CITY -- Unemployed Las Vegas pharmacist Sheik Ellias told legislators Monday he can't find doctors willing to operate on his two daughters, who both use wheelchairs.

Doctors won't operate on daughters Hannah, 8, and Zaynah, 5, because payments from the state's Medicaid program won't cover their actual costs.


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  • His girls suffer from cerebral palsy and leukodystrophy -- a progressive degeneration of the white matter of the brain -- leaving them unable to stand and in dire need of surgery. He also has a son with kidney problems.

    "Taking care of them is really tough,'' he said. "The issue right now is how to get treatment, which they require. Nobody's taking Medicaid patients. As a single dad, it is really devastating to continue to be denied. I have no idea what to do."

    Ellias spoke from Las Vegas via video conference during a pre-session hearing of the Senate and Assembly budget committees. His testimony put a human face on the suffering that some needy families are encountering in securing medical care in worsening economic times.

    Legislators are reviewing Gov. Jim Gibbons' $6.17 billion two-year budget proposal, which includes a 5 percent cut in what doctors and hospitals receive for treating Medicaid patients and caps enrollment at 25,000 in Nevada Check Up, a free health care program for poorer children. That is 40,000 less than the estimated number of children eligible for the program, though enrollment has typically fallen short of the number eligible.

    The proposed Medicaid cut is on top of a 5 percent reduction approved by the Legislature in December.

    Doctors have been complaining for years that Medicaid does not cover their treatment costs. Two physicians testified Monday that another 5 percent cut would prompt even more physicians to stop treating Medicaid patients.

    During the hearing, Nevada Hospital Association President Bill Welch said Medicaid payments that hospitals receive from the state amount to 60 percent of the actual cost of treatment.

    Medicaid is the state-federal program that provides health care for the poor, elderly, disabled and blind. Eligibility requirements are complex, but generally recipients can't earn much more than the federal poverty level of $10,400 a year. Exceptions are made for those with disabilities and extreme medical problems, such as those suffered by Ellias' daughters.

    In contrast, children are eligible for Nevada Check Up whose parents' combined annual earnings are no more than twice the poverty level.

    Gibbons' budget also does not replace any of the $55 million taken by the state from the counties' indigent accident care fund during December's special legislative session.

    The governor concedes his budget is nearly $2 billion short of what is needed keep medical and other state services at the levels anticipated when the Legislature adjourned in June 2007.

    Republican Gibbons won't raise taxes unless the increases are backed by the general public.

    The administration does not like to cut medical services, but "it is a money issue," said Charles Duarte, administrator of the state Health Care Financing and Policy Division.

    Democratic leaders, however, said Monday they won't accept the medical care budget cuts sought by Gibbons.

    "We must find a compassionate and fair solution to our budget crisis," said Senate Majority Leader Steven Horsford, D-Las Vegas.

    Noting that unemployment has jumped to 9.1 percent and could top 10 percent soon, Horsford said the number of people needing government-paid medical care only will increase.

    Gibbons' budget would destroy the safety net for people unable to pay medical costs, he added.

    For Ellias, the safety net already has been destroyed.

    Edwin Suarez, a pediatric physical therapist who has worked with Ellias' daughters off and on the past two years, said leukodystrophy affects the central nervous system causing the two children to have problems with balance. Without proper medical care, what coordination and balance they do have will start to deteriorate.

    "The more you stimulate, the slower the progression of the disease is,'' Suarez said. "That's why it is so important that these girls get proper care."

    Suarez said there are three orthopedic surgeons in Las Vegas. All of them have stopped taking new Medicaid patients.

    Other pediatric specialists also have stopped taking Medicaid patients, Suarez said.

    "Mr. Ellias tried to get his daughters in to see a vision specialist, but they were turned away,'' he said. "My office cannot absorb these cuts either. I'm not one for raising taxes, but I don't really see any solutions.''

    Doctors testified they simply cannot afford to keep treating Medicaid patients at the rates the state pays.

    "There is nothing we want to do more than treat kids," said Las Vegas surgeon Dr. Mark Barry. "It is extremely difficult to operate under these conditions."

    He said the amount of money he receives today for treating Medicaid patients is 55 percent less than what he was paid in 1994.

    Ellias is unemployed because he quit his pharmacist's job after his wife left him. His children need 24-hour-a-day care, he said.

    The Ellias girls receive physical therapy three times a week. He estimates the cost to care for his two daughters ranges from $3,000 to $4,000 per month, not including surgeries.

    Although Democrats have not yet backed tax increases or come up with their own budget plan, Assembly Speaker Barbara Buckley, D-Las Vegas, again called on citizens Monday to make suggestions to her nv2020.com Web site. Suggestions now include releasing all non-violent prisoners, establishing a four-day work week for state employees, taxing mining and legalizing gay marriages. Buckley also intends soon to re-examine all tax exemptions and abatements that the state has approved.

    Hospital industry lobbyists were horrified by the medical care cuts proposed by Gibbons.

    "We are talking about sick children," testified Larry Matheis, executive director of the Nevada State Medical Association. "They are children who need transplants, who have cancer, who need specialty care."

    Duarte said the decision to cap Nevada Check Up and cut Medicaid reimbursement payments was made "strictly on finances." Because of the declining economy, Duarte said the number of Medicaid recipients is expected to increase by 11.5 percent to 220,864 on July 1, 2010, and to 239,472 on July 1, 2011.

    Medicaid enrollment increases in direct proportion to increases in unemployment, he said.

    Contact Capital Bureau Chief Ed Vogel at evogel@reviewjournal.com or 775-687-3901. Contact Annette Wells at awells@reviewjournal.com or 702-383-0283.

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    thesusan wrote on January 28, 2009 12:38 AM: Why don't we try limiting the least effective areas of NV government first?

    Nevada Policy Research Institute studied the problem and proposed "sweeping reforms" including elimination of 3 NV state government agencies, eliminating PERS in favor of 401(k), merit raises instead of longevity raises with financial rewards for effecting cost savings, use competitive staffing for government agencies like Florida does, and ending efforts to reduce class size in favor of retaining qualified teachers. The think tank was of the opinion that the Nevada State budget deficit would eliminate the need for new taxes.

    Here's the link: http://www.lvrj.com/news/37258799.html


    taxpayer wrote on January 27, 2009 09:48 PM: The problem is that we have to many able body people abusing the system for their own greed. This guy and his children deserve help. We've got to cut down on illegals and welfare fraud artists. If he was illegal, the state would bend over backwards to ensure his children were taken care of. Taxpayers would be given the bill.


    pink wrote on January 27, 2009 09:15 PM: Guys cut the slack....tis guy is doin everything possible to make thing's better 4 his kids!! He is not abusin the system while he was workin he was payin tax so why not get help 4rm Govt if he can. Imagine if you were in his shoes its easy to judge ppl til u r in the same shoes!!Abt wife that shoes what sort of mother she is, enjoyin her life with someone else n not worry abt her kids..what would you do if ur wife did that??? My prayers are with Sheik that he gets all the help he can...


    sheik wrote on January 27, 2009 08:04 PM: THNX for the comments give by readers. For clarification only 2 daughters are on KATIE BUCKETT program run by medicaid and kids with permanent disability qualify for this with MD's report. IAM NOT ABUSING MEDICAID SYSTEM NOR using any tax payer's money--thnk for that. I did put in application for weekend shifts n sure will start sooner to work. As far as wife she is in New Zealand n settle with someone else and have her 2 months kid. Here iam sacrificing my life and wat ever i saved from working spending on my bread and butter.


    Hey Simple Guy wrote on January 27, 2009 04:42 PM: Then you go ahead and pay for it.Nothing's stopping you.


    derek marlowe wrote on January 27, 2009 04:11 PM: The government is broke, sorry but move to another place where you can get work. Didnt you save anything from the generous pharmicist salary?


    Peace wrote on January 27, 2009 03:53 PM: I understand what everyone is saying about this father needing to work. I wonder though if maybe the cost of childcare was too much. It is hard enough to find decent child care for a healthy child imagine the special care that these kids need? On top of every thing else all his kids have health issues. I would rather help him than the useless people who milk the welfare system for a living.


    Wait just a minute... wrote on January 27, 2009 03:33 PM: Well, if this father isn't working and providing for his family, I'd like to know what other state/federal programs are providing support to his family.

    Hey R-J, why don't you crunch the numbers? He's not working, how does he pay rent, provide food..he's obviously receiving medicaid (health benefits from the state).

    If these two parents would take financial responsibility for their children, then maybe he could take his hand out of taxpayers pocket.

    My message to the father: Get a job, sue your WIFE for abandonment and financial support. Get your house in order, and the rest will fall in place.

    Why is everybody else and the "system" suppose to compensate for these two parents?

    My heart goes out to the children, but that doesn't absolve the father of his responsibilities, and to do the right thing.


    Shannon wrote on January 27, 2009 01:48 PM: Jubal says: "My favorite: there is no reason to pay podiatrists to clip the toenails of the elderly who are too old & infirm to clip their own toenails."

    Actually, when dealing with an elderly diabetic, it should be the podiatrist who cares for the toenails, not a manicurist. Podiatrists have the expertise to evaluate if there are any problem areas such as poor healing wounds, etc. You don't want some manicurist carelessly clipping or filing the nails because they can cause more harm than good.


    moe wrote on January 27, 2009 01:46 PM: if they were illegals,would they get health care???i bet they would...


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